Current Affairs In Detail

Health Ministry placed Draft National Policy for Rare Diseases in its website
Health Ministry placed Draft National Policy for Rare Diseases in its website

The scheme provides financial assistance to patients, living below the poverty line, who suffers life-threatening diseases in the form of a one-time grant.

18 March 2020 Current Affairs:Ministry of Health and Family Welfare has finalized and placed the Draft National Policy for Rare Diseases on its official website. It was announced by the Minister of State (Health and Family Welfare), Sh Ashwini Kumar Choubey. 

Highlights:
♦ A component of rare diseases has been included in the draft. It was made effective from 1 January 2019.
♦ Under the Umbrella Scheme of Rashtriya Arogya Nidhi, the Ministry has included one-time financial assistance up to Rs.15 lakh to patients belonging to families living below the threshold poverty line for treatment of specified Rare Diseases amenable to one-time treatment in Government hospitals.  
♦ The financial assistance covers disorders amenable to treatment with Hematopoietic Stem Cell Transplantation (HSCT), including such Lysosomal Storage Disorders (LSDs) for which Enzyme Replacement Therapy (ERT) is presently not available and severe form of Mucopolysaccharidosis (MPS) type I within first two years of age.

Rashtriya Arogya Nidhi:
Rashtriya Arogya Nidhi was established as a society registered under the Societies Registration Act, 1860. It is also called the National Illness Assistance Fund. The scheme provides financial assistance to patients, living below the poverty line, who suffers life-threatening diseases in the form of a 'one-time grant.'